COVID VACCINE - ALTERNATIVE INJECTION SITE FOR LYMPHEDEMA - CDC APPROVED
https://www.lymphedemablog.com/2021/04/30/lymphedema-and-the-covid-19-vaccine/
https://www.cdc.gov/vaccines/covid-19/info-by-product/pfizer/downloads/standing-orders.pdf
See pg. 2 of 3 footnote on the CDC link. "¶ Alternately, the anterolateral thigh can be used. A 1.5-inch needle may be used if administering vaccine in this site."
ANITA SALAS MEMORIAL FUND
The Anita Salas Memorial Fund, a non profit 501(c)3, helps pay for women's breast or cervical cancer treatment, or related bills such as transportation, lodging, or medications for treatment. These women are moderate to low income, under-insured or uninsured.The funds go directly to the bills, not the woman. There is only a 5% administration fee. So, 95% is used for direct breast and cervical cancer services for women in New Mexico; with nominal amounts towards fundraising.
5301 Central NE #800 Albuquerque, NM 87108 Contact Consuela at 505-841-5896
CANCER FOUNDATION FOR NEW MEXICO
"Our mission is to help save lives by providing the needed support to enable every northern New Mexican with cancer to access treatment in Santa Fe. Many cancer patients throughout Northern New Mexico rely on us for mileage reimbursement, overnight lodging, grocery cards, and support groups. We understand that a cancer diagnosis can be overwhelming. We’re here to help. We receive no state or federal funding and all money that we raise stays here in our local community."
3005 S. St. Francis Dr. Suite 3-B Santa Fe, NM 87505 505-955-7931 https://cffnm.org/who-we-serve/patient-services/
SURVIVING SISTERS
This Santa Fe based support group for women with any type of cancer meets weekly via Zoom on Tuesdays at 4PM.
Contact Nancy Mims, "Ms. Fred" fredsys@comcast.net 505-577-1032
WRITE TO HEAL
This engaging workshop for cancer patients and survivors explores expressive writing as a way of healing. All skill levels welcome. "Based on (but not limited by) the life-changing diagnosis of cancer, this workshop offers “expressive writing” as a way of healing. While writing may not cure, it can heal. Writing and sharing our stories with others on parallel paths will be our avenue to reclaim our voices, and reconnect with our lives. You are welcome if you have never written or if you have always written."
Contact Joanne Brown, MSW Joanne@joannebrown.com 510-381-1205
CASTING FOR RECOVERY
An national organization that holds annual regional fly-fishing retreats for people who have experienced breast cancer. There is a northern NM group. www.castingforrecovery.org
NANCY'S LIST
An online resource for inspiration, an international directory of integrative practitioners, and financial resources available for kids and adults experiencing cancer. https://nancyslist.org/
CARING BRIDGE
This wonderful free website is a way for those in serious situations to communicate in an efficient, supportive way with those who love them. And they can communicate with you too. You won't need to expend precious energy reserves repeating things to many people. This non-profit organization does accept donations to keep it going. www.caringbridge.org
NATIONAL LYMPHEDEMA NETWORK - NLN
Client and professional resources extraordinaire, promoting best practice guidelines and standards of care. https://lymphnet.org/
LYMPHEDEMA BLOG
Great educational resource for clients and professionals alike. Funded by donations. https://www.lymphedemablog.com/
LIPEDEMA FOUNDATION
Client and professional resources, education and research. Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms. A common but under recognized disorder, lipedema may cause pain, swelling, and easy bruising. It is not obesity. https://www.lipedema.org/
LYMPHATIC EDUCATION AND RESEARCH - LE&RN
An extensive organization offering information, advocacy and educational symposiums for both lay and professional people. It's practical for anyone from those with new diagnoses, to professional researchers. Founded by Stanley Rockson, MD. http://lymphaticnetwork.org
THE LIPEDEMA PROJECT: THE DISEASE THEY CALL FAT
A volunteer non-profit oranization of clinical experts. Research and education, including a current study of lipedema pain and CBD. International physicians and experts involved. Soon publishing a book for clinicians. www.lipdemaproject.org
LIPEDEMA SIMPLIFIED
A sister organization of the Lipedema Project, geared towards lay people and those living with the disease. www.lipedema-simplified.org
BOOKS
Integrative Strategies for Cancer Patients: A practical resource for managing the side effects of cancer therapy, by Elena Lada, Kara Kelly
Lymphedema and Lipedema Nutrition Guide: foods, vitamins, minerals, and supplements by Chuck Ehrlich, Emily Iker MD, Karen Louise Herbst, PhD, MD, Linda Anne Kahn,CMT, CLT-LANA, et. al.
Lipedema: Principles and Practice of Diagnosis and Treatment, by Stanley Rockson, MD, Lesley Keith, OTD, Catherine Seo PhD. Available now for presale on Amazon or directly from The Lipedema Project.